This moment is not what I pictured. Instead of Thanksgiving Day prep and play time with one of our favorite kids, Charlie and I will stay home while l spend today hugging the toilet. I’m supposed to be making a pumpkin roll and cream cheese grape salad. I am not supposed to be taking little […]Read more "Picture Perfect"
Growing up, were you Ariel? Perhaps Cinderella or Jasmine? My personal favorite was Belle. Who wouldn’t want an endless supply of books and croissants at her fingertips? As I got older, I developed an appreciation for Toy Story. Imagine loving toys as a symbol of childhood, wonder and innocence. Sounds perfect. But it wasn’t until […]Read more "A Dream is a Wish Your Heart Makes"
I recently read some advice to embrace the chaos in my life, and I smiled a knowing smile. The smile was one that says, “YES. I know that feeling.” Let me explain. Once, after my son’s third heart surgery, it appeared he would not be going home with the achieved goals so carefully set out […]Read more "Staying Alive (One Beat at a Time)"
I want to share some times in my life in which seeing color mattered. The palette for our existence is full of limitless hues, but from the moment my son was diagnosed with a complex congenital heart defect, the shades of love surrounding me became more vibrant and extensive than any other time in my […]Read more "Color"
Words carry such power. Such force. So much meaning. Being called “smart” by your college professor does not illicit the same feelings as your mom saying the same. “Be brave” carries a vastly different message when it’s said to a child before open heart surgery than when it’s told to an adult before an interview. […]Read more "Words"
It felt good to go to the ER with a song and dance man. It felt good to let a star take the show as fear and anxiety took a back seat. I always make it a point to stay strong for my son and make our hospital visits a blast, but this time (our […]Read more "ER Star"
While leaving the hospital yesterday after Charlie’s post-op appointment, my face was hurting from so much smiling. It felt good to feel something I haven’t felt in a very long time. There’s not a word for it. It’s the feeling a parent has when she can breathe because the best case scenario for her son’s […]Read more "My Heart"