Change

This whole world is new to me. It’s not so much that the world has changed; it’s me that’s undergoing the transformation. I’m experiencing growing pains as my values, perspective, wants and needs are so unlike what they once were. Much is still the same …I still believe in adventure and going after what I […]

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The Simple Things

Who knew that I could ever be over the moon with excitement over something as mundane as pushing my son in the car cart at the grocery store on a crowded day? He didn’t understand why I mostly shopped alone or why we had to use the regular carts with his cart cover on the […]

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ER Star

It felt good to go to the ER with a song and dance man. It felt good to let a star take the show as fear and anxiety took a back seat. I always make it a point to stay strong for my son and make our hospital visits a blast, but this time (our […]

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My Heart

While leaving the hospital yesterday after Charlie’s post-op appointment, my face was hurting from so much smiling. It felt good to feel something I haven’t felt in a very long time. There’s not a word for it. It’s the feeling a parent has when she can breathe because the best case scenario for her son’s […]

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Cank You, God

If it were just me, I might have trouble giving thanks at the moment. As a human, I’ve reached my max. I cannot take another day of seeing my son go pale with pain, or bare an oxygen level similar to before surgery while I wait for it to rise. But as Charlie’s mommy, it’s my […]

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No Tears Allowed

I don’t like to cry. I refrain from doing it as much as possible. IF a tear escapes, it usually meets a hot and angered cheek before being hastily wiped away. I know crying isn’t a sign of weakness and many find it therapeutic. However, it often makes me feel worse and weaker. I’ve been […]

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How Many?

Someone recently said I should buy a lottery ticket because my situation is due for a good change. It may be absurd, but with all of the current odds in my life that need to be beat, I see no need to add more. Besides, after selling a majority of my belongings and letting go […]

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